What It’s Like to Volunteer in a Research Study

Ever wonder what it’s like to become a participant in a clinical research study? This podcast outlines all aspects of recruitment, vetting, protocols, and considerations for joining a study and dispels common misconceptions often fostered by Hollywood movies or TV shows.
Jessica Ganga, Communications & Digital Media Coordinator at the Foundation, moderates a panel of research coordinators for mobility, spinal cord injury (SCI), stroke, and traumatic brain injury (TBI) and the Foundation's recruitment manager. They share how volunteers help Kessler Foundation further its clinical research on advancing treatments, which impact the lives of individuals with disabilities worldwide. Volunteers are the heart of our research!   

Learn more about the panel:   
Rachel Byrne, Senior Research Coordinator (SCI)
Kate Goworek, Research Coordinator (Mobility)
Jenny Masmela, Senior Research Coordinator (Stroke)
Sam Schmidt, Research Recruitment Manager
Angela Smith, Senior Research Coordinator (TBI)

Frequently Asked Questions about the Foundation's Research -

Volunteers are the heart of our research! Interested in joining a study? For more information on in-person and tele-studies, check out our studies webpage

Definitions/Keywords
=================================================   
What is spatial neglect?
Patients who have had a stroke or traumatic brain injury may have a neurological syndrome called spatial neglect, which affects their ability to pay attention to their surroundings and body parts on the less affected side (the left side for patients with right brain injury). Spatial neglect is disabling. Patients may 'forget' to shave, groom, or dress the left side of their bodies. They also have major problems with driving, reading, and balance. Read more about our spatial neglect caregiver webpage and professional pages 

What is KF-NAP®? 
Kessler Foundation Neglect Assessment Process (KF-NAP®) is an assessment tool that may help clinicians detect the presence of spatial neglect and measure the severity of the syndrome. 

What is KF-PAT®? Kessler Foundation Prism Adaptation Treatment (KF-PAT®) is implemented in occupational therapy for post-stroke spatial neglect. Including prism adaptation treatment in standard of care for patients with post-stroke spatial neglect improved functional and cognitive outcomes. 

What is MRI contrast 
There are two major types of Magnetic Resonance Imaging (MRI) scans: with contrast and non-contrast. The main distinction is that for contrast MRIs, a dye (gadolinium-based) is given to the patient intravenously before the scan. Contrast is often order by a physician who wants to highlight a particular part of the body. 

What is HIPPA? 
The Health Insurance Portability and Accountability Act of 1996 (HIPAA) is a federal law that required the creation of national standards to protect sensitive patient health information from being disclosed without the patient’s consent or knowledge. For more information, go to https://www.hhs.gov/hipaa/for-professionals/privacy/index.html 

=================================================   
Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. Be sure to subscribe to our SoundCloud channel “KesslerFoundation” for more research updates.

★ Support this podcast ★

Listen to all of our podcasts or by topic breast cancer, expert interview series, multiple sclerosis, spinal cord injury, traumatic brain injury

© 2020 Kesler Foundation